National Healthcare Quality & National Healthcare Disparities Reports: Data Sources Appendix, 2013

United States Renal Data System (USRDS)

Sponsor

U.S. Department of Health and Human Services, National Institutes of Health (NIH), National Institute for Diabetes and Digestive and Kidney Disease (NIDDK) in collaboration with the U.S. Department of Health and Human Services, Centers for Medicare & Medicaid Services (CMS).

Description

USRDS is a national data system that collects, analyzes, and distributes information about end stage renal disease (ESRD) in the United States. It includes continuous mandated reporting from physicians who treat ESRD. The major source of ESRD patient information for USRDS is the CMS Renal Beneficiary and Utilization System (REBUS)/Program Management and Medical Information System (PMMIS) database. The REBUS/PMMIS database contains demographic, diagnostic, and treatment history information for all Medicare beneficiaries with ESRD. The database has been expanded to include non-Medicare patients. In 2003, the database was transitioned to an Oracle relational database and is now known as the Renal Management Information System (REMIS).

These CMS-supplied data are supplemented by data from the Social Security Administration, OPTN Transplant Database, U.S. Census Bureau, local and national ESRD provider databases, and international ESRD registries.

Primary Content

Date of onset of ESRD, treatment modality, causes of death, patient survival, hospitalization, cost and cost-effectiveness, and institutional providers of ESRD treatment. Special surveys cover behavioral risk factors, preventive health measures, health status, activity limitations, and health care access and utilization.

Population Targeted

ESRD patients.

Demographic Data

Gender, age, race, and ethnicity.

Years Collected

Continuously since 1988.

Schedule

Annual.

Geographic Estimates

National, State, and county.

Contact Information

Agency home page: http://www.niddk.nih.gov.

Data system home page: http://www.usrds.org.

References

U.S. Renal Data System. USRDS 2013 annual data report: atlas of chronic kidney disease and end-stage renal disease in the United States. Bethesda, MD: National Institutes of Diabetes and Digestive and Kidney Diseases; 2013..

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