Evaluation of Health IT Tools and Resources Available at the AHRQ NRC for Health IT Web Site: Final Report

Agency for Healthcare Research and Quality. Designing Consumer Health IT: A Guide for Developers and Systems Designers; 2012.

Agency for Healthcare Research and Quality. Special emphasis notice: AHRQ announces interest in career development (K01, K02, K08) and dissertation (R36) grants focused on health information technology (IT). Wired [Internet]: Agency for Healthcare Research and Quality; 2008. http://grants.nih.gov/grants/guide/notice-files/NOT-HS-08-014.html. Accessed on February 1 2013.

Agency for Healthcare Research and Quality. Health information technology: best practices transforming quality, safety, and efficiency. Wired [Internet]: Agency for Healthcare Research and Quality; 2013.

AHRQ. National action plan to improve health literacy. Wired [Internet]: Agency of Healthcare Research and Policy; 2010. http://psnet.ahrq.gov/resource.aspx?resourceID=18329. Accessed on February 22 2013.

AHRQ. AHRQ Health IT Bibliography. Wired [Internet]; 2011.

American Medical Association. Health literacy: report of the Council on Scientific Affairs. J Am Med Assoc. 1999;28(6):552-7.

Baker DW. The meaning and the measure of health literacy. J Gen Intern Med. 2006;21(8):878-83.

Ball MJ, Smith C, Bakalar RS. Personal health records: empowering consumers. J Healthc Inf Manag. 2007;21(1):76-86. PMID: 17299929.

Berkman ND, Sheridan SL, Donahue KE, et al. Health literacy interventions and outcomes: An updated systematic review. 2011.

Center for Universal Design. The principles of universal design. Wired (Internet): NC State University; 2011. https://projects.ncsu.edu/design/cud/about_ud/udprinciples.htm

Chin J, Diehl V, Norman K. Development of an Instrument Measuring User Satisfaction of the Human-Computer Interface. .  Proceedings of SIGCHI '88; 1988 New York. ACM/SIGCHI; pp. 213-8.

Christian B. Test everything: notes on the A/B revolution. Wired [Internet]; 2012. http://www.wired.com/wiredenterprise/2012/05/test-everything/. Accessed on February 1 2013.

Cruickshank J, Packman C, Paxman J. Personal Health Records: Putting patients in control? 2020health Report; 2012. http://www.2020health.org/2020health/Publications/publications-2012/Public-Health-Records.html2013.

DeWalt DA, Broucksou KA, Hawk V, et al. Developing and testing the health literacy universal precautions toolkit. Nurs Outlook. 2011 Mar-Apr;59(2):85-94. PMID: 21402204.

Eichner J, Dullabh P. Accessible health information technology (Health IT) for populations with limited literacy: a guide for developers and purchasers of health IT Prepared by the National Opinion Research Center for the National Resource Center for Health IT.  Rockville, MD: Agency for Healthcare Research and Quality; 2007.

Goldberg L, Lide B, Lowry S, et al. Usability and accessibility in consumer health informatics current trends and future challenges. Am J Prev Med. 2011;40(5 Suppl 2):S187-97. PMID: 21521594.

Grossman JM, Zayas-Cabán T, Kemper N. Information gap: can health insurer personal health records meet patients’ and physicians’ needs? Health Affairs. 2009;28(2):377-89.

Halamka JD, Mandl KD, Tang PC. Early experiences with personal health records. Journal of the American Medical Informatics Association. 2008;15(1):1-7.

HealthyPeople.gov. Healthy People 2020 objective topic areas. Wired [Internet]; 2012.http://www.healthypeople.gov/2020/topics-objectives/2020-Topics-and-Objectives-Objectives-A-Z.

Hernandez LM. Health literacy, eHealth, and communication: putting the consumer first: workshop summary. Washington, DC: National Academy Press; 2009.

IOM. Health literacy—a prescription to end confusion‎. Institute of Medicine, National Academy of Sciences; 2004. https://www.ncbi.nlm.nih.gov/pubmed/25009856

John Hopkins University. Web Accessibility. Wired (Internet): John Hopkins University; 2013. http://accessibility.jhu.edu/

Kailas A, Chong CC, Watanabe F. From mobile phones to personal wellness dashboards. IEEE Pulse. 2010;1(1):57-63. PMID: 20875965.

Keselman A, Logan R, Smith CA, et al. Developing informatics tools and strategies for consumer-centered health communication. J Am Med Inform Assoc. 2008;15(4):473-83. PMID: 18436895.

Koh HK, Berwick DM, Clancy CM, et al. New federal policy initiatives to boost health literacy can help the nation move beyond the cycle of costly 'crisis care'. Health Aff (Millwood). 2012;31(2):434-43. PMID: 22262723.

Koh HK, Brach C, Harris LM, et al. A proposed ‘health literate care model’ would constitute a systems approach to improving patients’ engagement in care. Health Affairs. 2013;32(2):357-67.

Kramer-Jackman KL, Popkess-Vawter S. Method for technology-delivered healthcare measures. Comput Inform Nurs. 2011 Dec;29(12):730-40. PMID: 21694585.

Lee SY, Arozullah AM, Cho YI. Health literacy, social support, and health: a research agenda. Soc Sci Med. 2004;58(7):1309-21.

Mancuso JM. Health literacy: A concept/dimensional analysis. Nursing & Health Sciences. 2008;10(3):248-55.

Manganello JA. Health literacy and adolescents: a framework and agenda for future research. Health Educ ‎Res. 2008;23(5):840-7.

McCormack L, Bann C, Squiers L, et al. Measuring health literacy: a pilot study of a new skills-based instrument. J Health Commun. 2010;15(S2):51-71.

Miles MB, Huberman AM. Qualitative data analysis: An expanded sourcebook: Sage Publications, Incorporated; 1994.

Moreno L, Peterson S, Bagchi A, et al. Personal Health records: What Do underserved Consumers Want?: Mathematica Policy Research, Incorporated; 2007.

National Academies. Health care comes home: the human factors. Wired (Internet): Committee on the Role of Human Factors in Home Health Care; 2011. http://sites.nationalacademies.org/dbasse/bohsi/health_care_comes_home/. Accessed on February 22 2013.

Nutbeam D. Health promotion glossary. Health Promotion International: V 0113. no. 4: Oxford University Press; 1998.

Nutbeam D. Health literacy as a public health goal: a challenge for contemporary health education and communication ‎strategies into the 21st century. Health Promot Intl. 2000;15:259-67.

Paasche-Orlow MK, Wolf MS. The causal pathways linking health literacy to health outcomes. Am J Health Behav. 2007;31(Suppl 1):S19-26.

Peters K, Niebling M, Slimmer C, et al. Usability guidance for improving the user interface and adoption of online personal health records.  2009.

plainlanguage.gov. Improving communication from the federal government to the public. 2011. http://www.plainlanguage.gov/. Accessed on February 22 2013.

Rainie L. Two-thirds of young adults and those with higher income are smartphone owners. Pew Research Center’s Internet & American Life Project; 2012. http://pewinternet.org/Reports/2012/Smartphone-Update-Sept-2012.aspx. Accessed on September 30 2012.

Ratzan SC, Parker RM. National library of medicine current bibliographies in medicine: health literacy. In: Selden CR, Zorn M, Ratzan SC, eds. Bethesda, MD: National Institutes of Health, U.S.Department of Health and Human Services; 2000.

ReadabilityFormulas.com. Readability formulas. 2013. http://www.readabilityformulas.com/. Accessed on February 22 2013.

Reti SR, Feldman HJ, Ross SE, et al. Improving personal health records for patient-centered care. Journal of the American Medical Informatics Association. 2010;17(2):192-5.

Rootman I. Health literacy and health promotion. Ontario Health Promotion E-Bulletin; 2002. http://www.ohpe.ca/node/175. Accessed on February 1, 2013.

Schillinger D. Improving the quality of chronic disease management for populations with low functional ‎health literacy: a call to action. Dis Manage. 2001;4:103-9.

Smith A. 35% of American Adults Own a Smartphone. Washington, DC: Pew Internet and American Life Project; 2011. http://pewinternet.org/Reports/2011/Smartphones/Summary.aspx Accessed on October 13 2011.

Sørensen K, Van den Broucke S, Fullam J, et al. Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health. 2012;12(1):80-.

Sox CM, Gribbons WM, Loring BA, et al. Patient-centered design of an information management module for a personally controlled health record. Journal of medical Internet research. 2010;12(3).

Speros C. Health literacy: concept analysis. J Adv Nurs. 2005 Jun;50(6):633-40. PMID: 15926968.

U.S. Department of Health and Human Services. National action plan to improve health literacy. Washington, DC: U.S. Department of Health and Human Services; 2010.

U.S. Department of Health and Human Services. Your guide for developing usable & useful Web sites. Wired (Internet): U.S. Department of Health and Human Services; 2013. www.usability.gov. Accessed on February 1 2013.

Usability Professionals' Association. Resources: about usability. Wired (Internet): User Experience Professionals Association; 2013. https://uxpa.org/resources/about-ux

von Wagner C, Steptoe A, Wolf MS, et al. Health literacy and health actions: a review and a framework from health psychology. Health Educ Behav. 2009 Oct;36(5):860-77. PMID: 18728119.

Walker J, Ahern DK, Le LX, et al. Insights for internists: "I want the computer to know who I am". J Gen Intern Med. 2009 Jun;24(6):727-32. PMID: 19412641.

Weitzman ER, Kaci L, Mandl KD. Acceptability of a personally controlled health record in a community-based setting: implications for policy and design. Journal of medical Internet research. 2009;11(2).

Whitten P, Holtz B, Cornacchione J, et al. An evaluation of telehealth websites for design, literacy, information and content. J Telemed Telecare. 2011;17(1):31-5. PMID: 21075801.

Wolpin S, Stewart M. A deliberate and rigorous approach to development of patient-centered technologies. Semin Oncol Nurs. 2011 Aug;27(3):183-91. PMID: 21783009.

Zayas-Cabán T, Dixon BE. Considerations for the design of safe and effective consumer health IT applications in the home. Quality and Safety in Health Care. 2010;19(Suppl 3):i61-i7.

Return to Contents
Proceed to Next Section