Evaluation of Health IT Tools and Resources Available at the AHRQ NRC for Health IT Web Site: Final Report

Environmental Scan Part 1: Examples of Resources (9)

Health IT Organizations & Websites: 2 resources

Organization	Resource Title	Resource Link
AMIA	DRAFT: Policies and Practices to look for from Organizations that Collect Your Personal Health Information: A Consumer Checklist	http://www.amia.org/sites/amia.org/files/2007-Policy-Meeting-draft-consumer-checklist.pdf
AHRQ	Consumer Health Information Technology in the Home: A Guide for Human Factors Design Considerations	http://www.nap.edu/openbook.php?record_id=13205&page=1

Web Search: 7 resources

Source	Resource Title	Resource Link
AAFP	"How to Select an Electronic Health Record System"	http://www.aafp.org/fpm/2005/0200/p55.html
AHIMA	Web-Based Systems for Dissemination of Health-Related Data: A Guide for Public Health Agencies Developing, Adopting, or Purchasing Interactive Web-Based Data Dissemination Systems	http://library.ahima.org/xpedio/groups/public/documents/government/bok1_024248.pdf
CHF	Electronic Medical Records: A Buyer’s Guide for Small Physician Practices	http://www.chcf.org/publications/2003/10/electronic-medical-records-a-buyers-guide-for-small-physician-practices
Microsoft	Connected Health Framework Architecture And Design Blueprint	http://www.microsoft.com/health/ww/ict/Pages/Connected-Health-Framework.aspx
Interactions Magazine	User Experience Design Guidelines for Telecare (e-health) services	http://dl.acm.org/citation.cfm?doid=1288515.1288537
U.S. DHHS	Guide to Writing and Designing Easy-to-Use Health Websites	http://www.health.gov/healthliteracyonline/

Discussion

The following is further description of new resources identified in Part 1 of the environmental scan that could be added to the next iteration of the Guide's "Additional Materials" section.

Health Literacy Online Guidance
Health Literacy Online: A Guide to Writing and Designing Easy-to-Use Health Web Sites
http://www.health.gov/healthliteracyonline/
This is a research-based how-to guide for creating health Web sites and Web content for the millions of Americans with limited literacy skills and limited experience using the Web. It is geared to Web designers, content developers, and other public health and communication professionals. Some of the research that informs this guide was also used to inform the Health IT Literacy Guide. This is the only other guide that is specifically focused on health literacy.
Guidelines for Home Care Health IT Products
Consumer Health Information Technology in the Home
http://www.nap.edu/catalog.php?record_id=13205
This guide is for purchasers and developers of health IT to develop and purchase home health IT applications that will be easy for consumers to use in a wide range of home environments. It provides insights and recommendations on choosing and developing applications that take into account users' cognitive, physical, and sensory abilities. In terms of tools, the document provides some consideration charts and a design checklist.
Consumer Education Support Materials for Providers
Optimization Strategies for Client Education and Report Cards
http://www.stratishealth.org/documents/HITToolkitHH/2.Utilize/2.2Effective%20Use/2.2Optimze_Ed_Report_Cards.doc
This tool discusses some ways to evaluate client or patient education components of EMR systems to assess tailored versus generic information.

Environmental Scan Part 2: Examples of Best Practices (22)

AHRQ Health IT Bibliography Review: 3 resources

Ball M, Smith C, et al. Personal Health Records: empowering consumers. J Healthc Inf Manag 2007 Winter;21 (1):76-86.

Halamka J, Mandl KD, Tang P. Early Experiences with Personal Health Records J Am Med Inform Assoc 2007. Oct 18.

Young, AS., Shoai, R., et al. Information technology to support improved care for chronic illness. J Gen Intern Med. 2007 Dec; Suppl 3:425-30.

Literature Search: 19 resources

Fensli R, Oleshchuk V, et al. Design Requirements for Patient Administered Personal Electronic Health Records Biomedical Engineering Trends in Electronics, Communications and Software 2011.

Grossman J, Zayas-Caban T, et al. Information Gap: Can Health Insurer Personal Health Records Meet Patients' and Physicians' Needs? Health Affairs 2009;28 (2):377-389.

Goldberg, L., Lide, B., et al. Am J Prev Med. Usability and accessibility in consumer health informatics current trends and future challenges. 2011 May;40 (5 Suppl 2):S187-97.

Hernandez L. Health Literacy, eHealth, and Communication: Putting the Consumer First: Workshop Summary 2009. http://www.ncbi.nlm.nih.gov/books/NBK36296/pdf/TOC.pdf

Kailas, A., Chong, C., et al. From Mobile Phones to Personal Wellness Dashboards. IEEE Pulse. 2010 Jul/Aug;1 (1):57-63.

Keselman A, Logan R, Smith CA, et al. Developing informatics tools and strategies for consumer-centered health communication. J Am Med Inform Assoc 2008;15:473–83.

Kramer-Jackman, KL., Popkess-Vawter, S. Method for Technology-Delivered Healthcare Measures. Comput Inform Nurs. 2011 Jun 21. Epub ahead of print.

Lerouge, C., Ma, J., et al. User profiles and personas in the design and development of consumer health technologies. Int J Med Inform. 2011 April 8. Epub ahead of print.

Moreno L, Peterson S, et al. Personal Health Records: What do Underserved Consumers Want? Mathematica Policy Research Inc May 2007;4.

Peters K, Niebling M, Slimmer C, et al. Usability guidance for improving the user interface and adoption of online personal health records [Internet], 2009. Accessed 9/14/2011.

Reti SR, Feldman HJ, et al. Improving personal health records for patient-centered care. J Am Med Inform Assoc 2010;17:192–5.

Rodriguez M, Casper G, et al. Patient-centered Design: The Potential of User-Centered Design in Personal Health Records

Schnipper, JL., Gandhi, TK., et al. Design and implementation of a web-based patient portal linked to an electronic health record designed to improve medication safety: the Patient Gateway medications module. Inform Prim Care. 2008;16 (2):147-55.

Sox CM, Gribbons WM, Loring BA, Mandl KD, Batista R, Porter SC. Patient-Centered Design of an Information Management Module for a Personally Controlled Health Record. J Med Internet Res 2010;12 (3):e36.

Walker J, Ahern DK, Le LX, et al. Insights for internists: "I want the computer to know who I am". J Gen Intern Med 2009;24:727–32.

Weitzman ER, Kaci L, Mandl KD. Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design. J Med Internet Res 2009;11 (2):e14.

Whitten, P., Holtz, B., et al. An evaluation of telehealth websites for design, literacy, information and content. J Telemed Telecare. 2011;17 (1):31-5. Epub 2010 Nov 12.

Wolpin, S., Stwart, M. A Deliberate and Rigorous Approach to Development of Patient-Centered Technologies. Semin Oncol Nurs. 2011 Aug;27 (3):183-91.

Zayas-Cabán T, Dixon BE. Considerations for the design of safe and effective consumer health IT applications in the home. Qual Saf Health Care 2010;19 (Suppl 3):i61–7

Environmental Scan Part 3: Examples of Health IT Products (30)

Web Search: 19 resources

Product	Type	Resource Link
Daily Burn	Popular consumer health IT	https://dailyburn.com/
FitBit	Popular consumer health IT	http://www.fitbit.com/
Fooducate	Popular consumer health IT	http://www.fooducate.com/
HealthMap	Popular consumer health IT	http://healthmap.org/en/
Kids Health - Parent Resources	Consumer health site targeting limited literacy audience	http://kidshealth.org/parent/
Microsoft Amalga	Provider health IT	http://www.youtube.com/watch?v=Zyp9xQUIzkA
My Net Diary	Popular consumer health IT	http://www.mynetdiary.com/
Patients Like Me	Popular consumer health IT	http://www.patientslikeme.com/
Ringful Health	Popular consumer health IT	https://ringfulhealth.wordpress.com/

Literature Search: 11 resources

Product	Type	Citation
Google Health	PHR	Weitzman ER, Kaci L, Mandl KD. Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design. J Med Internet Res 2009;11 (2):e14.
Indivo	PHR	Halamka J, Mandl KD, Tang P. Early Experiences with Personal Health Records J Am Med Inform Assoc 2007. Oct 18.
Lifelines2	EHR	Wang, TD., Wongsuphasawat, K., et al. Extracting Insights from Electronic Health Records: Case Studies, a Visual Analytics Process Model, and Design Recommendations. Journal of Medical Systems 2011; May 4.
MedWISE	EHR	Senathirajah, Y., Kaufman, D., et al. Cognitive Analysis of a Highly Configurable Web 2.0 EHR Interface. AMIA Annu Symp Pro 2010; 2010: 732-736.
Microsoft Health Vault	PHR	Weitzman ER, Kaci L, Mandl KD. Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design. J Med Internet Res 2009;11 (2):e14.
Mychart	PHR	Halamka J, Mandl KD, Tang P. Early Experiences with Personal Health Records J Am Med Inform Assoc 2007. Oct 18.
MyMedicalRecords	PHR	Peters K, Niebling M, Slimmer C, et al. Usability guidance for improving the user interface and adoption of online personal health records [Internet], 2009. Accessed 9/14/2011.
PatientSite	PHR	Halamka J, Mandl KD, Tang P. Early Experiences with Personal Health Records J Am Med Inform Assoc 2007. Oct 18.
Patient Gateway	EHR, consumer informatics	Schnipper, JL., Gandhi, TK., et al. Design and implementation of a web-based patient portal linked to an electronic health record designed to improve medication safety: the Patient Gateway medications module. Inform Prim Care. 2008;16 (2):147-55.
Talking Touchscreen	Consumer health informatics	Yost, KJ., Webster, K., et al. Acceptability of the talking touchscreen for health literacy assessment. J Health Commun. 2010;15 Suppl 2:80-92.
VA EHR	EHR	Russ, AL., Saleem, JJ., et al. Electronic health information in use: Characteristics that support employee workflow and patient care. Health Informatics J. 2010 Dec; 16 (4):287-305.

Discussion

The following are a few examples of health IT products that model best practices pertaining to the development of health IT products.

Microsoft HealthVault's online health tracking tools are examples of existing products that provide personalized health content such as specific guidance and tailored behavior change suggestions (Peters et al., 2009): https://www.microsoft.com/en-us/p/healthvault/9wzdncrfj3mc?activetab=pivot%3aoverviewtab.
Hospital Compare by the startup ringfulHealth is a mobile device application that helps consumers choose the best provider in their area based on ratings and location. Users can search for providers in a variety of ways and are presented with the results as both a list and a map.
PatientsLikeMe is a social networking site that connects users to others with similar symptoms and medical conditions. It also allows users to find clinical trials for which they might be eligible based on their PHI: http://www.patientslikeme.com/.
Fooducate is a smartphone app that allows users to scan the barcode of food products at the grocery store to find out that food's nutritional value and health rating. The app also allows users to compare products: http://www.fooducate.com/

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