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Appendix B: Final Literature Review—Appendix D. Fidelity to Standford CDSMP

Design and Evaluation of Three Administration on Aging (AoA) Programs: Chronic Disease Self-Management Program Evaluation Design (continued)

Article # Citation Fidelity to Stanford CDSMP Program Modification
1 Ahmed & Villagra (2006) No stated modifications No stated modifications
3 Barlow, Turner, et al (2009) CDSMP implemented by National Health Service (NHS) in the UK, with lay leaders NHS runs the program. It is administered to multiple sclerosis (MS) patients only.
4 Barlow, Wright, et al (2005) CDSMP implemented by NHS in the UK, with lay leaders The NHS-run CDSMP programs have conformity in who runs the program, being run through Primary Care Trusts (PCTs) by two individuals with personal experience of a chronic condition. However, AoA-funded CDSMPs must demonstrate fidelity to the Stanford model, which requires only one lay leader and another leader of varying background. In practice, some AoA-funded CDSMPs have lay leaders and health professionals or other volunteers. Because both the delivery and content of the NHS-funded CDSMP was prescribed with limited flexibility, it created tension and difficulty in meeting the needs of local communities. (Rogers et al, 2006)
7 Bedell (2008) Modified version of CDSMP for work transition & self-management skills for HIV/AIDS patients. In this study, CDSMP was referenced, but this program is distinct from the CDSMP in that the former combines work transition skills and self-management skills for HIV/AIDS and the outcomes measured are quite different than those from CDSMP.
12 Ersek, Turner et al (2008) Modified CDSMP program for PAIN In this self-management program for PAIN, Lorig's works (CDSMP) were referenced, but this program is distinct from the CDSMP, e.g. outcomes measured.
14 Gitlin, Chernett, et al (2008) Modified for urban older African Americans in Philadelphia, delivered by a senior center. named Harvest Health. Concerned with health disparities for older African Americans in Philadelphia, the CDSMP was adjusted for delivery by a senior center and evaluated whether participants derived similar benefits to those reported in the original Lorig and colleagues (1999) trial with middle-class White patients. State modifications were: 1.) Name change to Harvest Health; 2.) Orientation session 1 wk before start of sessions; 3.) Use of culturally grounded language for key words; 4.) Change in reference to Black church in instructor’s manual and replacement with reference to ‘‘spirituality’’; 5.) Use of culturally appropriate music during aerobic phase of session; 6.) Serving of healthy snacks and emphasis on avoiding sweets and salt; 7.) Introduction of moment of silence at beginning of each session; 8.) Additional unit on communicating with health care provider of a different race, and 9.) Certificate of completion of program
15 Goeppinger, Armstrong et al (2007) CDSMP & Arthritis Self-help Course (ASHC). Only one or the other was administered to a participant. They were modified for cultural acceptability. Not stated modifications for CDSMP and the main differences for the ASMP is that it is 2 hours long, has "pain management, energy conservation, osteoporosis, sleep, and making nontraditional treatment decisions" as its content, while it does not have "Advanced directives, better breathing and communication" as its content.
17 Haas, Groupp, et al (2005) No stated modifications No stated modifications
19 Jerant, Moore-Hill et al (2009) Used Homing in on Health (HioH), a CDSMP variant The program used Homing in on Health (HioH), a CDSMP variant. a variant of the CDSMP delivered either in subjects' homes or by telephone, it was found that delivering the intervention in participants' homes (but not via telephone)
21 Kendall, Catalano, et al (2007) Modified CDSMP for recent stroke patients The program was the Australian CDSMP. Similar to NHS-funding CDSMPs, Australian courses use a highly structured course protocol, but instead of lay leaders, use trained health professionals (Kendall et al, 2007). On a national level, the Australian Commonwealth Department of Health and Ageing implemented the Sharing Health Care Initiative, which involved several large demonstration projects across a variety of settings (Commonwealth Government Department, 2005).
22 Kennedy, Reeves, et al (2007) CDSMP implemented by NHS, with lay leaders This program was an anglicized version of the Stanford CDSMP.
24 Lorig, Ritter et al (2001) No stated modifications No stated modifications
25 Lorig, Ritter, et al (2008) Online version of EPP (Expert Patients Programme), based on the CDSMP The NHS-run CDSMP programs have conformity in who runs the program, being run through Primary Care Trusts (PCTs) by two individuals with personal experience of a chronic condition. However, AoA-funded CDSMPs must demonstrate fidelity to the Stanford model, which requires only one lay leader and another leader of varying background. In practice, some AoA-funded CDSMPs have lay leaders and health professionals or other volunteers. Because both the delivery and content of the NHS-funded CDSMP was prescribed with limited flexibility, it created tension and difficulty in meeting the needs of local communities. (Rogers et al, 2006)
26 Lorig, Ritter, Gonzalez, et al (2003) Spanish-language version called Tomando Control de Su Salud: not direct translation, cultural modifications This program was a Spanish-language version called Tonado Control de Su Salud. This program was not a direct translation, some cultural modifications were made.
27 Lorig, Ritter, Jacquez, et al (2005) Spanish-language version called Tomando Control de Su Salud: not direct translation, cultural modifications This program was a Spanish-language version called Tonado Control de Su Salud: not direct translation, cultural modifications
28 Lorig, Ritter, Laurent, et al (2006) Online version of CDSMP This program was an online version of CDSMP. No details on modification were specified.
29 Lorig, Ritter, Plant, et al (2005) Compared Arthritis Self-Management Program (ASMP) & generic CDSMP. This study compared the Arthritis Self-Management Program (ASMP) and the generic Chronic Disease Self-Management Program (CDSMP). The main differences between the programs are: ASMP (CDSMP) is 2 (2.5) hr long, has "pain management, energy conservation, osteoporosis, sleep, and making nontraditional treatment decisions" as its content, while it does not have "Advanced directives, better breathing and communication" as its content.
30 Lorig, Sobel, Stewart, et al (1999) No stated modifications No stated modifications
31 Lorig, Sobel, Ritter, et al (2001) No stated modifications No stated modifications
32 Nolte, Elsworth, et al (2007) Fidelity to CDSMP not specifically mentioned. Unknown
34 Powers, Olsen, et al (2009) Modified CDSMP program delivered by nurses via phone For this program, nurses, as opposed to laypeople, delivered the intervention by phone. There was no face-to-face meetings between the nurse and the patient.
38 Rose, Arenson, et al (2008) Adapted to low-income urban African-Americans This program was adapted to low-income urban African-Americans.
41 Smeulders, van Haastregt, et al (2009) No stated modifications No stated modifications
42 Sobel, Lorig, & Hobbs (2002) No stated modifications No stated modifications
43 Swerissen, Belfrage, et al (2006) CDSMP modified by participants first language (Vietnamese, Chinese, Italian, or Greek) This study evaluated the original CDSMP in the context of "real-world" clinical practice.

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Page last reviewed December 2014
Page originally created May 2011
Internet Citation: Appendix B: Final Literature Review—Appendix D. Fidelity to Standford CDSMP. Content last reviewed December 2014. Agency for Healthcare Research and Quality, Rockville, MD. http://archive.ahrq.gov/research/findings/final-reports/aoa/aoachronic-apbd.html

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