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National Consumer Principles (continued)
- Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information
- Governance and administration of e-health networks should be transparent and publicly accountable
Notes:
Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information
- Reasonable safeguards developed at front end & just follow the information as it is accessed or transferred
- Notification in a timely manner if breach or privacy violation
- Meaningful legal and financial remedies to address any security breaches or privacy violations
- Federal privacy standards that restrict the use and disclosure of personally identifiable health information should apply to all entities engaged in HIE
The governance and administration of e-health networks should be transparent and publicly accountable
- Independent bodies, accountable to the public, should oversee electronic health information sharing
- Consumers should have equal footing with other stakeholders
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